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Today is the 6th annual Limb Girdle Muscular Dystrophy (LGMD) Awareness Day. I am proud that the state of Massachusetts and the city of Cambridge recognizes this special day.
I was diagnosed with Limb-Girdle Muscular Dystrophy in 2010 while in graduate school. LGMD has many different variants such as: 2b, 21, and more. Unfortunately for me, I do not know my sub-type. My neurologists and I have taken several genetic test which have all come back unknown. As a result of not being able figure out my sub-type, I’m unable to enter any clinical trials until we figure that out. Sometimes I wonder, will I ever know my sub-type?
“Let’s all do at least one thing to raise awareness about LGMD today! Share your story, wear lime green, or color and post a selfie with “Girdie,” the LGMD Advocacy Ambassador! There are so many different ways we can use our voice as a community today!”
To learn more about LGMD visit LGMD-Info.org
“Together We Are Stronger”